Imagine having a child with a disease that's so rare, it took more than two years to get a diagnosis.
That's reality for one Lubbock family.
"No parent ever wants to hear their child has an illness, much less an illness that will cause every part of their body to suffer and they will live a shorter life because of it," Cassie Johnston said.
Bryce Johnston, 4, has a progressive disease called Alstrom Syndrome.
It causes complete blindness, deafness, diabetes and even organ failure.
"There's only been 800 cases in the world ever, in medical history, so most doctors have not heard of it," Cassie said.
But for one week, Bryce's real life waiting game was put on hold.
The Johnston family spent a week at Disney World, thanks to the Make-A-Wish Foundation.
"It was like, 'Oh my gosh, she's a normal 4-year-old.' She's not being poked and prodded by doctors and getting blood draws, I mean it was just like she gets to get away from all that."
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